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Why I Went Public About Crohn’s Disease

I recently had a fellow Crohn’s blogger and former TV news anchor reach out to me. She brought up questions I hear a lot from people.

“How did you get comfortable sharing your disease so publicly? Are you afraid of being labeled ‘the sick news anchor?’”

I would lie if I said I wasn’t nervous about taking off my “perfect TV persona” mask and unveiling my real, raw truths. But it so was necessary- for me and for my fellow Crohnies across the globe.

Here’s how it happened. I was only 24 years old and working morning news in Dayton, Ohio. I was just two years out college and so proud of my career- I had credibility in my market and was known for my bubbly and outgoing on-air personality. I knew the community looked up to me. 

10845928_842558625765558_2668779628810012550_n
During my time at WKEF/WRGT-TV in Dayton, Ohio.

Then, I got my worst flare-up since being diagnosed. For those not familiar with Crohn’s, a flare-up is out of control inflammation in your colon. This can cause severe pain, bleeding, anemia, exhaustion, and nutrient loss. One day I was standing by on camera crouching down in pain. The producer was in my ear saying “Stand by, Hilary…5, 4, 3, 2…”. I stood up fast and started talking, trying to mask the pain on my face. My bubbly and outgoing personality was hanging on by a thread. I had lost 10 pounds and viewers started to notice. My hair started falling out because I was so low on iron and nutrients. I had to cut my hair short, but tried to keep smiling.

short hair
I lost 10 pounds and cut my hair shorter. I bought a wig just in case, but rarely wore it on air.

I went into the hospital and this is where I had a breakthrough. I asked myself, “Who the heck are you trying to fool, Hilary?” “Why is it so important for you to portray a perfect life?” “Who is that helping?” The answer was, I was helping absolutely no one, least of all me. I realized the energy I was using to hide my disease on and off camera could be used to uplift myself and others. I had to accept that Crohn’s is a part of me, but it doesn’t have to define me. It is the reason I am strong and brave. It is the reason I know my body so well. It is my motivation to get up in the morning and kick ass. Then I realized I was blessed with a massive platform to bring awareness to this disease- television news. What better way to use my status than to change the world, one Crohnie at a time. So, I swallowed my pride, came to peace with my vulnerability, and when I got out of the hospital I asked my station to sponsor my very first Take Steps Walk for Crohn’s and Colitis. This was the beginning of “Hilary’s Crohnies.”

 

I exposed my disease to the public for the first time that year and never looked back. Since then, I have become a public spokesperson for the Crohn’s and Colitis Foundation and an advocate for Crohn’s patients. I emcee the yearly Take Steps Walk and share my journey on social media and television.

crohns interview
This is during a 2017 interview with the Crohn’s and Colitis Foundation. We are previewing the Take Steps Walk for Crohn’s and Colitis in Tampa.

And guess what? The most amazing thing has happened since I came out. My viewers, their families and friends, and people from across the world started coming out, too. They shared their personal stories with me and I realized SO many people are affected by Inflammatory Bowel Disease. Too many. The thing is– we just don’t talk about it and that makes us feel alone.

So, for all you Crohnies out there, listen up! I am here to officially say, stamped online forever, I am proud to be The Sick News Anchor!

 

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